Support urgent access to Givinostat for boys with Duchenne muscular dystrophy
Step One Select your constituency
Dear Friends
Muscular Dystrophy Ireland is helping coordinate a campaign email to TDs and senators urging their support to secure urgent access to Givinostat for boys with Duchenne muscular dystrophy. We are asking as many people as possible to send it.
You can simply use the email template below and select the TDs and senators in your area.
One year ago, Givinostat was approved in Europe. One year later, boys in Ireland with Duchenne are still waiting. Boys are losing strength, mobility and independence. Some who were eligible for treatment last year may no longer be eligible today.
Don't delay. Give our boys Givinostat today.
Thank you for your continued support, advocacy and solidarity.
Together we are stronger!
The Muscuar Dystrophy Ireland Team, in solidarity with the Time is Muscle campaign
Pick your constituency from the list or click on the map.
Action Overview
Dear Friends
Muscular Dystrophy Ireland is helping coordinate a campaign email to TDs and senators urging their support to secure urgent access to Givinostat for boys with Duchenne muscular dystrophy. We are asking as many people as possible to send it.
You can simply use the email template below and select the TDs and senators in your area.
One year ago, Givinostat was approved in Europe. One year later, boys in Ireland with Duchenne are still waiting. Boys are losing strength, mobility and independence. Some who were eligible for treatment last year may no longer be eligible today.
Don't delay. Give our boys Givinostat today.
Thank you for your continued support, advocacy and solidarity.
Together we are stronger!
The Muscuar Dystrophy Ireland Team, in solidarity with the Time is Muscle campaign